chrysler building
Originally uploaded by thinkscientist

Been to New York and I got the t shirt to prove it

I hope you like the photo, you can click on it to go through all of my photos on flickr

It was taken from the top of the empire state building. That really was tremendous challenge for me to get to the top of, however friendly staff on site made my goal accomplishable. Again, I hate to say it but the 3 hours it took to get to the top would probably have been a tad impossible to achieve 12 months ago. I think the break without relapse that campath has provided, is showing fruitful results so far.

I was amazed at how much I was able to do whilst in new york and for a few days whilst there felt as if I had nothing wrong with me at all until sort of 9pm each day when parasthesia dictated bed time.

On the flip side however my monthly blood tests of recent show a weakening in my platelet count. Although there is no cause for serious concern, I am now taking weekly blood tests to monitor my platelets in my blood.

May 2008!

9 months!!!

The last few months have also been relapse free (touch wood)

I have gained a lot of strength back and am trying to address issues of muscle wastage all over my body to help me become stronger and overcome my symptoms. This trial has brought me hope and a positive attitude, and I dont know if it's the campath or the psychology behind the trial but I am definitely feeling more energetic and happier than 12 months ago. My consultant did say it would be around this time of the trial that we would be seeing results, I think he may be right.

I am very excited today as I am off to New York tomorrow :)

It is the first time I have travelled anywhere since getting ill. That in itself seems an achievement enough to celebrate about. 12 months ago even contemplating a trip to new york would have been dismissed. I just pray that I have the energy to get around the concrete jungle more often referred to as Manhattan.

Hello again,

Onto March now, we have now got past the 6 month stage...

I am starting to feel more energetic and getting my life back slowly. I am able to integrate within social circles and start enjoying life again. I am starting to get confidence back to be able to venture out more and more and catch up with faces I havent dared show my face to since being diagnosed...it feels good. I think I am starting to overcome the burden MS has put on my life. I hope I can extend this confidence further and really push the boundary further. If you know me personally then i don't need to tell you I dont do things by halves ;)

Apart from feeling I have more energy, I am still relapse free. I still have days where I have more energy than others but I think most people have those anyway.

The numbness in my right side still exists.... Only time will tell if this will ever go.

February 2008...

I saw my consultant last month for my 3 monthly check up.

I did feel a lot perkier than I did the last time I had my check up done.

My results were quite normal and check up aside, I do feel I have a lot more stamina these days. I dont feel so groggy in the mornings and my cognitive side has picked up a lot. Alas I still suffer from pins and needles when I walk around and my still have the pins and needles in my right arm and leg.. I hope this goes away, it really does hold you back.

Trying to look at the positive side, I have been relapse free since my Campath infusion. This has given time for my body to repair I am assuming and I hope that some patience and time will help me make a full recovery. Please check back to see if that's the case

Hello again,

Happy New Year First off!!

Have you made your New Year's resolutions??

Mine is to take life a little slower and try to enjoy things more...

Taking life slower certainly helps with the MS. I do feel a lot more relaxed, however walking still tires me and causes me to lose control of my right leg...following intensive pins and needles.

Hello Again

The last few months have been hectic to say the least... I was right in not being too ambitious of being energetic forever as shrotly after the first month the steroids had completely worn off, I got the flu and then felt very much the same as normal. Bad sleep, headaches, weakness in my right side. It did feel depressing, For almost 2 months i felt as if all of this was a waste of time.... but maybe that was me just getting over the ill as I am starting to feel a little bit perkier now. I hope this leads to me building my strength back. From meeting my doctor this month, he has reassured me it is in the next 6 months that I should start feeling a difference so patience is my guide... do check back soon to see if patience prevails..

It has been one month since Campath has been administered and for the last few weeks I have been feeling quite active. However I think this might be the steroids still working. In terms of my MS i still seem to get tired if i have a very active day but nonetheless I feel rather energetic. I am not getting my hopes up too high but I hope that this trend is the campath working. However I seem to be coming down with the flu now and I have been advised to not get ill so I hope it goes away soon.